Sept. 25, 2010

Just wanted to let everyone know that I'm doing GREAT and LOVING being @ HOME!!!

Sept. 23, 2010

Today's the Start of a NEW ERA... HOME!!! I can't wait to be able to get there. Sure seems like the FORCES are fighting us though. UGH. We are not even trying to go home yet and it took an act of congress just to get ready to spend the night in the Hospital.

Mommy fought all day trying to get my medicine and Oxygen ready. After being STERN and telling the pharmacy that, tomorrow is not soon enough... it has to be tonight, finally they said, ok, give us 2 hours!!!

Then the battle of getting the Oxygen Delivered.... after 2 Faxes, 4 calls, 3 people, and 2 deliveries, we finally got the equipment!!!! And then, we still have another delivery when we get home. However, we did get a different oxygen bottle, so now we have 2 travel, t large travel, and a large stationary on its way.

Another step of the Discharge process is passing the Car Seat Challenge. Thats where I sit in the car seat for an hour and a half while being monitored to see if there is any change in my breathing, etc. I PASSED!!!

So, now here we are, just CHILLIN in the Room. The first time for me to be alone with Mommy and Daddy. . . as a family, without everyone telling us what to do, how to do it, etc... So far, we have fitted the car seat, fed me, and now just enjoying our time together. Its almost like just being born, Which by the way, tomorrow is my 3 month birthday. So far, our stay over is going just fine and we will be going home tomorrow! I can't wait!

Discharge:

As far as we know, Discharge will be after 8pm. UGH... I wish it could be earlier, but hey at least I get to go home. FINALLY!

Sept. 22, 2010

Just a quick note to let everyone know that they have diven us a DISCHARGE DATE!!! Yep, i finally get to go home on Friday, Sept. 24th... WHAT A BIRTHDAY PRESENT!!!

They finally gave us the Results of the APNEA test and everything came back normal. They did a barrium swallow test today and it showed that I have a little ACID REFLUX so they are prescribing Medicine for that.

The EYE DOCTOR came by today and said that my eys are doing really good. infact so good that usually she would ask to see a patient back within a month, but she told mommy to just get them checked within the year!!!

Mommy and Daddy have to "ROOM IN" tomorrow night since I am being discharged on Oxygen and Monitors. That is where they come and we all stay together in a room (like a hotel) at the NICU but Mommy and Daddy take care of me. The nurses are only a call away if they have a question or need help, but other than that, it's just us.

Thank you everyone who has continuously prayed for our family during these 3 months. It has been an experience to say the least. Definatly one that mommy and daddy will NEVER FORGET!

Sept. 21, 2010

Now I lay me down to sleep.....

Well, today has been a a little restful, after yesterdays events, I NEEDED REST! So, we thought the OCRG was 8 hours, it turns out that it is actually 12 hours. It started at 10 and didn't end until 10pm. UGH. That was rough.

First off, they took me out of my comfy z-flo bed isolet, and put me into an Open Crib. Then, they put monitors on me and BOUND ME UP so I couldn't hardly move and would stay warm. I'm not used to being bound all day. I also had to lay FLAT on my back, yet another thing that I have never done. Then to top it off, they wouldn't let mommy and daddy hold me, change my diaper, check my temp, or feed me. They said that they had to be careful and to log every change in me, so the nurse did everything during that time. They even had to write down every time that someone put my binky back in my mouth.

We still do not have any results from the OCRG, so we still don't know when we going home, if I need the Barrium Swallow test, When I'm going to do the Car seat challenge, etc. All we know is,

WE WANT OUT OF HERE... SOON!!!

We will post more as soon as we have more news to post.

Thanks again to everyone who has been praying for me and please don't stop now.

September 15th-18th, 2010

Right off the bat let me say we are sorry for not updating blog for last several days but things have been happening in a whirl wind around here!



I am doing really well and here is a very quick update as it is really really late and we have to get up really early in the morning! :O)



We had great news on the 15th as Dr Casey said that she was going to take me off the Nasal Canual and ween me off the Oxygen! Sooo..off it comes and I seem to be doing very well except when I eat, I have to have a little O2 then.



Then on the 16th we had and Echocardiogram which the Drs discovered that I have Pulminary Hypertension meaning that due to my prematurity my lungs did not properly develope and there is damamged lung tissue that causes the lungs to have built up blood pressure inside the lungs due to trying force the air out of the lungs thru damaged tissue! So what this means is that I have to be on constant oxygen, 100% at an eighth of a liter. Dr said that I would probably be on this oxygen for 3 to 6 months. We know a God who can make it all better in NO time at all!



We found out on the 17th that we are about to be going home!!!! Yay! We had an MRI on my head/brain to make sure no additional brain bleeds or any abnormalities! God is good! Results came back quickly and my brain is normal! :O) No Bleeds! Thank you Jesus!



On Monday we have a Sleep Study Test scheduled called an OCRG. This test will last 8 hrs and will monitor my every movement from inside and out to check to see if I am experiencing any apnea or if I have acid reflux. Test will be read on Tuesday. Depending on if I have acid reflux and how bad, there is a Barrium Swallow test that may be performed on Wednesday then they have to watch me for 2 days afterward since they would probably put me on medication for Acid Reflux and they want to see how I do on the meds. Then Daddy and Mommy have to sleep with me at the Hospital the evening before I get discharged. They completely care for me in a set aside hospital room by theirselves so that they can learn how to use the oxygen and monitors but if there are any problems, then the nurses are just a call away! I also have to pass a car seat challenge meaning that I am placed in my car seat for about 2 hrs under the care of the nurses so they can see if while all crunched up in there, I don't turn blue! Once all these things are completed then they will let us go home! Thank You Jesus! We are possibly looking at going home Mid to late next week! Not sure on date just depends on the tests and the outcomes!



Please be praying for my tests this up coming week that the Lord will have His Perfect Will and His Way!



Also, the Eye Dr came around and told Mommy that there is no evidence of ROP (Retinopathy of Prematurity) meaning NO abnormalities in the vessels in my eyes! She said that there was a few odds and ends but nothing to be worried about! Again, Thank you Jesus!



Love everyone and Thank you for your continuous prayers!

September 12th-14th, 2010

Sleeping Cutie Pie!

Well, we have been on cruise control for the last several days! I am doing very well just feeding, sleeping and gaining weight! I now weigh a whopping 4.10 lbs! :O)

The nurses keep asking when am I going home but the Drs have not started us on a discharge plan yet! Mommy did talk to Dr Casey today and she took me off of Oxygen again! Yay! My Nasal Canula was taken off at about 7pm. Mommy called to checked on me at 11:30pm and my nurse told her that I was doing ok. Having a few ups and downs but nothing major! Thank You Jesus! Tomorrow will tell the tale to see if I can stay off of it! In God's timing! Not Mommy's and Daddy's! :O)

Please keep praying for God's will in our lives! Thank you sooo much!

Love and appreciate all the many prayers! God Bless!

9-11-10

Well first of all I would like to say sorry that we have not posted anything in about a week. Mommy and Daddy have been busy between the 65th Anniversary at the church, Working on the New House, keeping up with me at the hospital, etc. So, please forgive them.
Dr. Casey (NICU Level 2 DR) told us Wednesday that they are probably going to do the Sleep Apnea test on me early next week. This test will tell them what I will need when I go home. I.E. Oxygen, Monitor, ETC. She also said that after that they will start the Discharge process. The Discharge process is a 3-5 day process so there is a possibility of us going home by next weekend!! I can’t wait. I am already 2.5 months old and have not even seen my Bedroom!

Today I weigh 4lbs 9.5 oz. WOW what a long way from the 1lb 2oz I started off at! I am now eating at least 43cc’s of Formula. Ok, so some times they FORCE ME to eat it cause I am not digesting all my food like I should. I’m taking it in , but not getting rid of any on a regular basis if you know what I mean.

Well, we have a little good news and a little bad news… the GOOD NEWS is they took me off of the Oxygen except when I am feeding… The BAD NEWS is they put me back on the oxygen 2 days later. They said I was working too hard to breathe so they wanted me to just grow and not work too hard. But, this is the same thing I done both times that they weaned me off of breathing equipment, so there is HOPE!

I’ve had several visitors this week. On Monday Uncle Mark and Aunt Robin Campbell (kinda family)came and visited me. Aunt Pat and Uncle Glen came on Thursday, then on Friday Pastor and Lita Smith came by and Ooohed and Ahhed over me. Then after 5, Aunt Nana came by, then my Daddy. Then after nurse shift change Uncle Ronald and Aunt Gia Evans (ok so they are almost family in more ways than one) came up and visited.

Well, Good night Please forgive us if there is any typo’s in this update. Daddy is typing this while Mommy is driving and we ALL know how that is. (wink)

Thanks for keeping us in your prayers. I look forward to meeting all of you soon.

Love , Mikele J’Lee

September 7th, 2010

Today was a Great Day! See the smile on my face! Lol! The drs said that I could have all to eat that I wanted to! YEA! I have to eat a min of 43 cc's but I can have more if desired. Mommy fed me at 9pm and I ate 45 cc's! That is an oz and a half at once!

I am still on my oxygen but I am trying to be weened! While Mommy was feeding me, I needed no extra help with my o2! Afterward I was on just a little over room air and it was too much! I needed to be turned down to room air only! I beleive we are on the road HOME!!!

IN JESUS NAME!!!

Please continue to pray for my lungs that the Lord would allow them to work as they need to!

God Bless and have a great Day!

Love ya'll!

Sept. 5th, 2010

Hi Everyone.

How do you like my new BINKIE... it has a DUCK (bet you can't guess who got that for me) atached to it so that it helps hold it in my mouth. Pretty Cool HUH?

Well, the good news today is that I weigh 4lb 4.4 ozs!!! Yep, I'm growing like a weed!

The bad news is they still have not been able to wean me off of my oxygen. I do really good until time to feed, then I need a little extra usually. Please begin to really pray that my Breathing gets better. This is the next MAJOR step that I have to take before I can go home and enjoy my new bed and Bedroom! This little ISOLET (incubator) is really begining to get small.

Well, as usual, I need to stop talking so DADDY can go to bed. HE HE.

'night everyone. Thanks for all yours prayers,!!!

Sept. 4th, 2010

Just a quick note to let everyone know I FINALLY MADE IT!!!! YEP, I'm a big o 4lbs!!

I'm doing good and just slowly but surely growing!

HAPPY BIRTHDAY TODD. Hope you had a GG-RR-EE-AA-TT DAY!!!

Catch up with you guys later.

G'Night!

September 1st, 2010

Somebody is Smiling! :O)

Today the Drs came in with GREAT news! No more Tube Feedings for me! I can have all my 8 feedings a day by bottle! Yay! I did have a little set back yesterday though :O( While attempting to Breastfeed for the first time, I became so tired, I could not bottle feed for the next 2 feeds! I also had some episodes where I forgot to breathe while attempting to bottle feed due to being overly tired! Freaked Mommy and Daddy out but we all survived! Mommy says I look better Pink instead of Purple though! Please continue praying for me to do better at my feedings and if there are any signs of Acid Reflux that the Lord Heal that area of my Journey! Also, please keep in mind that they are still trying to get me off my Oxygen over the next couple of days! In Jesus Name!!!!

Love you and God bless!